Radiotherapy Burns

After a few reasonably good days, Ray and I both had a real downer on Sunday. Megan needed to go to Hemel so Ray drove and I tagged along. Ray and I crept along like a couple of snails, we didn’t feel well enough to manage our normal walking pace and came home as soon as Megan had finished her shopping. When we got back Ray went off to bed and I followed soon after, we both felt better after a snooze. It has been a while since we both needed to rest in the afternoon, we slept well overnight too so we obviously needed it.

Butterflies

I had my quarterly B12 injection in my bottom for the first time on Monday, it used to hurt when I had it in my arm but this time I didn’t feel it at all, that was a pleasant surprise! Tomorrow I have to go for the Pre-Op assessment for the operation to remove the Scleral Buckle in my left eye. That will be interesting, I expect to have to go through the whole explanation about why I can’t have blood or blood pressure taken from my arms. I wonder if I will need a cannula for the operation and if so will that have to go in my leg? The implications of having Sentinel Node Biopsies to both armpits begin to have more significance when needing medical treatment.

Ray saw his GP for a check-up, he will be off work until after seeing Dr Burn in early February, if Dr Burn is in agreement then he can go back part time to begin with. Ray and I went over to London Colney in the afternoon, I didn’t want him driving all that way on his own as he has only just started driving again. Ray dropped me off at TK Maxx and then went round to his head office. His colleagues were pleased to see him and he was able to have a chat with his Chief Exec about a return to work plan. Prior to his return, Ray will have a meeting with his Chief Exec, Heath & Safety Advisor and Occupational Health Advisor to agree the phased return plan, workload and any other issues relevant to his future working arrangements. It sounds like they have his best interests at heart which is very reassuring.

Another pleasant surprise on Monday was having my blog listed in the weekly round-up of ‘best blogs’ on the ‘Journeying Beyond Breast Cancer’ page: http://journeyingbeyondbreastcancer.com/2015/01/10/weekly-round-up-94/

I was honoured to have my blog featured, I have been following the page for a while and have read some brilliant articles there, and on the weekly round-up list, so to have mine included gave me a real boost.

I have been brought quite low by events last week and am still struggling with the implications to my future happiness. I am trying to forget about it but it is not easy to keep it out of my mind, it is night time when I should be sleeping that it really plays on my mind. I can only hope that this situation will improve with time.

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But I have had my mood lifted this week by kind friends sending supportive messages to me on Facebook, and for this I am grateful, you have kept me out of the pits dear ladies, thank you!

Today, Ray and I went for Tuesday Relaxation at the Lynda Jackson Macmillan Centre, after the session we went round to the Radiotherapy Department so that I could ask for some advice about my nipple blister. The Radiotherapy Nurse was very helpful, she gave me some lotion to use, and a medicated dressing to try as well. She also confirmed that I should not think about going back to work until the blistering and sore skin is healing well. The skin in the area which had the intensive booster treatment last week is getting more tender and red with each day, it could continue to do so up to four weeks after finishing my treatment. It isn’t quite like sunburn as the redness begins in the area in and around each skin pore and then gradually spreads out to the surrounding skin, it is beginning to itch sporadically but it is bearable.

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But I remain optimistic, the skin and physical scars will heal soon, the emotional scars will take longer, maybe even my lifetime, I’m not sure if having Cancer has changed me, maybe it is really too soon to tell. When I am back to my ‘pre-cancer treatment’ routine I may become more aware of changes in my outlook on life. Having the outlet of this blog is wonderful, I have always found it easier to express my feelings in writing, and in posting blogs I have been better able to understand and work through what has been happening to me since being called back after routine Mammogram screening for biopsies and then receiving the diagnosis.

Many years ago, when I was a babe in arms, my Nana Rose was looking after me with Great Aunt May, my Nan was one of fourteen children (twelve surviving past infancy). Great Aunt May had put me in my nightdress, one of those with a pull in tie at the neck that they no longer make because of babies being suffocated, and had laid me in my cot to sleep. Well you can probably guess what happened, my Nan came in to check on me and I was blue and not breathing, this was before mouth to mouth was common knowledge, my Nan says she undid the nightdress, took me outside, and prayed to God to save me. She used to tell us this story often, and she said that God had saved me for a reason and that I would have a special purpose in life.

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I don’t know what she was hoping for, but I’m not sure I have achieved anything special. But maybe writing this blog, sharing my experiences of Breast Cancer to help others is it? My son and daughter each have a friend with a mother recently diagnosed with Breast Cancer, they tell me that both women have been following my blog, if my words can help, then yes, I guess that I have achieved something.

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8 thoughts on “Radiotherapy Burns

  1. I’m sorry that you are having such a hard time with radiation. And to have eye surgery on top of that really doesn’t seem fair.

    Don’t let the jerks at work take up any more space in your head. This reaction seems to happen to a lot of cancer patients who are viewed as taking a “holiday” from work. Some holiday! I wrote about one of my experiences at the start of “My Breast Cancer Came Back” where I overheard someone saying that I just get cancer whenever I want time off from work.

    Congratulations about being included in “Journeying Beyond Breast Cancer”! It is really quite an honour to be mentioned in the same article with women who have been blogging for years and who are highly respected in the breast cancer community.

    Good luck with your eye surgery.

  2. Thank you Sharon, I could postpone the eye operation but decided I might as well get it over with.

    I remember reading “My Breast Cancer Came Back”, how can people be so insensitive? It can be a cruel world.

    Yes, I was delighted to be included in “Journeying Beyond Breast Cancer”, I have read many excellent blogs through the weekly round-up, I think it may even be where I first found your blog.

    Bless you x

  3. Ouch, blimey! I’m not looking forward to this part. I’ve seen some quite awful rad burns from other girls, it’s quite worrying.
    Hope you’re doing well? xxx

    • Don’t worry, it is uncomfortable but bearable, my neighbour has had breast cancer twice and advised me to lather on the moisturiser, this is good advice. I have read somewhere that it is best to start using moisturiser two weeks before the Radiotherapy begins, I have been using E45. I do catch myself about to have a scratch when it is itchy and manage to stop. I’m doing OK under the circumstances thank you. Hope you are keeping well, how are you getting on with the gratitude jar? xxx

      • The itching is my worry, I think I’ll sleep with mittens on. Good advice about the E45 cream and moisturing two weeks prior, thank you.
        I have a couple of days to catch up on with the gratitude jar! *smacks hand*
        Xxx

      • My GP gave me antihistamines to take at night time, it may be psychosomatic but it does ease the itchiness. 🙂 I haven’t even started my jar yet! xxx

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