It is now just over a week since Ray’s last visit to the hospital so I thought it was time I updated on his progress. There is no change in his speech, he still has the lisp which sounds quite cute, there is something very endearing about it. There is also no change with the difficulty chewing and swallowing. Ray wakes up in the morning with pain, but once he has taken the first dose of Tramadol and then continues to take it regularly, it is bearable and under control for the remainder of the day.
Ray had an appointment with his GP on Monday as his sickness certificate had expired, Dr Hussain has now signed Ray off work until the 9th of February 2015. Since having the continual pain, and with not being able to do much, Ray has been feeling low, so they discussed him having anti-depressants, Ray felt it was best for him to start taking them before giving it a chance to take hold so now has these to take too. It is fortunate we decided to buy a Prescription Pre-Payment Card, as Ray now has four different types of tablets to take each day.
Ray taken on our holiday to Cumbria in June
This morning two letters from hospitals arrived, one was a copy of the report sent from Wycombe Hospital to Ray’s GP, it has details of his diagnosis in proper medical terms, so here it is:
Left hypoglossal nervy palsy – due to left internal carotid aneurysm dissection at skull base.
Ray has felt well enough to come with me for my Radiotherapy since Wednesday, it is so good to have his company, in this and at home. I think I would be feeling very lonely without him, although I would like the circumstances to be different, I am grateful he is home with me.
The other letter was for me, from King Edward VII Hospital, with an appointment for the Pre-Op Assessment Clinic on 14th January at the Prince Charles Eye Unit. This is in preparation for the removal of the Scleral Buckle in my left eye. All being well, the operation will be done around two weeks later, ah, just in time for my birthday then. I hope that the removal will not cause so much disturbance as occurred when it was fitted. I had a general anaesthetic for the fitting, for the removal I will be having local anaesthetic only, I am very nervous about this, but I have resolved that if Ray can get himself in the MRI Scanner, then I can cope with being conscious for my eye operation. Fingers crossed!
This photo was taken a few days after the operation.
And now, back to breasts! You may recall that I had asked one of the Radiotherapists about the discomfort in my right breast, the staff had reviewed my scans and apparently it is being caused by two Seroma in the breast putting pressure on the remaining breast tissue. If the seroma get any larger and begin to distort the measurements then they will need to do something about them, but for now it’s a case of grin and bear it.
Yesterday evening I began to feel some itchiness in the skin between my breasts, it has persisted today. Putting my bra on this morning, I noticed that the skin was tender where it touches my skin particularly around the bottom band, so begin the side effects of the Radiotherapy.
I mentioned it today at my treatment session, the advice was to switch to E45 cream and to make up Camomile Tea, wait for it to cool and bathe my skin with it. I will try these suggestions out, sitting here this evening, even my ‘crop top’ bra is making me feel sore, trouble is that going unsupported is uncomfortable, swinging about on the loose is not pleasant for tender boobies.
Dearest sister Dee, you mention about having a local anaesthetic for your eye op. I had that when they did my cataract and it was an absolute walk in the park, honestly! I did not feel a thing and there was no pain or discomfort at all, so I am sure you will be fine. You just get lots of eye-numbing drops and they work very well. xxx
Dearest sister Nicola, Fingers crossed then!! xxx
I’m glad that Ray has an official diagnosis. I hope he also has an official treatment plan. It is a blessing that he can accompany you to your appointments, even if the circumstances are not the best.
That picture of your eye made my eye water in sympathy pains. I hope the eye surgery won’t be too difficult. Your family has had way more than its fair share of illness and treatment over the last several months.
I hope the radiation is bearable and that the seromas disappear rapidly on their own.
Hugs.
Hi Sharon, Ray has to see his specialist next month, we hope to get a treatment plan at this appointment. He is much better than before Christmas which is a relief.
I have the Pre-Op assessment for my eye operation tomorrow but no date for Surgery yet.
Hugs